This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Wednesday, August 1, 2018
Caroline has incrementally started to recover from her high-dose chemo (which ended on 7/19). She is starting to sit up in the bed/chair, is doing some music and art activities, and she is talking again! She was able to get off oxygen, and has been weaning off her IV nutrition, and transitioning to formula feeds through her NG tube (she still is not eating solid foods, but that will come in time). She also has not had a fever in the last 48 hours, and she has reduced the number of pushes on her pain medicine button (self-weaning), which is also very promising! We are hopeful that this progress continues. Caroline's white blood cell count/ANC (aka: immune system) is starting to appear, so we're hopeful she's turned the corner and is on the rebound!
Thank you for the continued prayers and support,
The Lantz Family
Finally sitting up on Tuesday morning!
Reunited with Andrew on Sunday (7/29) - they were both so happy!
Nona and Papa are here for a week!
She practically launched out of bed when she saw Papa!