It’s hard to continuously re-arrange weekly plans when this stuff happens, but we forge ahead knowing things can always be worse…
Thank You for the continued thoughts and prayers!
The Lantz Family
#carolinestrong
#ftgf
Nov 2017: Diagnosed with Stage IV high-risk Neuroblastoma. Nov 2017–Apr 2019: Completed standard treatment; NED. Apr 2019–Apr 2021: Completed DFMO clinical trial. Apr 2022: Relapse. Apr 2022–Jun 2023: Completed relapse treatment; NED again. Jun 2023–Jun 2024: High-dose DFMO (compassionate use) clinical trial. Jun 2024: Second relapse. Jul 2025: NED again. Mar 2026: Relapse.
Showing posts with label 365 pediatric cancer foundation. Show all posts
Showing posts with label 365 pediatric cancer foundation. Show all posts
Monday, October 24, 2022
Admission Delays
For the second week in a row, Caroline’s admission has been delayed because her lab work isn’t meeting the minimum blood count levels for her double chemotherapy and antibody treatment. She didn’t mind too much last week, but today she left feeling sad because getting bumped out another week means she may miss celebrating Halloween at home, if her counts are high enough to be admitted. We went through this back in 2018 — she got bumped a few weeks in a row for low counts. Most likely, her bone marrow cells are just too beat up from treatment, and struggling to recover. Other than that news today, Caroline has been feeling well and is her normal, energetic self.
It’s hard to continuously re-arrange weekly plans when this stuff happens, but we forge ahead knowing things can always be worse…
Thank You for the continued thoughts and prayers!
The Lantz Family
#carolinestrong
It’s hard to continuously re-arrange weekly plans when this stuff happens, but we forge ahead knowing things can always be worse…
Thank You for the continued thoughts and prayers!
The Lantz Family
#carolinestrong
Saturday, April 23, 2022
More Tough News
Caroline's bone marrow biopsy came back showing evidence of disease. We are deflated, but not defeated. It's such a helpless feeling to watch your “visually” healthy and happy child have such an aggressive cancer taking over their body. Again.
Today is Day 2 of Cycle 1: 2 chemos and an antibody therapy. The chemo side effects hit her hard yesterday, but luckily, she was able to get medication to counteract it...although it made her feel out of sorts and yucky all day. Day 2 of Chemo started this morning at 6:30am, and it’s mind-blowing to think that she’s already received eleven medications in less than 4 hours…with lots more to come. The antibody therapy is extremely painful - it runs over 20 hours and is combined with a constant drip of Dilaudid, a few “pre-meds" (Tylenol, Benedryl, Zofran, Pepcid, Gabapentin and an antibiotic) to prep her body for the drug, as well as various other medications over the 20 hours to address side effects. She’ll basically be connected to IV medications from now until we leave.
Shout out to Caroline’s new friend, Zack, who she met at the Preds game 2 weeks ago. She taught him about hockey, and in return he offered to help design and launch a t-shirt campaign through his merchandise company. We really appreciate all the love and support from his team. If you would like to get a #carolinestrong t-shirt, they are now available by clicking here.
We’ve also listed other ways you can support below; we’re beyond grateful.
Praying for a miracle,
The Lantz Family
Today is Day 2 of Cycle 1: 2 chemos and an antibody therapy. The chemo side effects hit her hard yesterday, but luckily, she was able to get medication to counteract it...although it made her feel out of sorts and yucky all day. Day 2 of Chemo started this morning at 6:30am, and it’s mind-blowing to think that she’s already received eleven medications in less than 4 hours…with lots more to come. The antibody therapy is extremely painful - it runs over 20 hours and is combined with a constant drip of Dilaudid, a few “pre-meds" (Tylenol, Benedryl, Zofran, Pepcid, Gabapentin and an antibiotic) to prep her body for the drug, as well as various other medications over the 20 hours to address side effects. She’ll basically be connected to IV medications from now until we leave.
Shout out to Caroline’s new friend, Zack, who she met at the Preds game 2 weeks ago. She taught him about hockey, and in return he offered to help design and launch a t-shirt campaign through his merchandise company. We really appreciate all the love and support from his team. If you would like to get a #carolinestrong t-shirt, they are now available by clicking here.
We’ve also listed other ways you can support below; we’re beyond grateful.
Praying for a miracle,
The Lantz Family
#carolinestrong
#ftgf
Family Meals via UberEats (email to margaretlantz@gmail.com)
Misc Treatment Needs via Amazon Gift Card (email to margaretlantz@gmail.com)
Day 2 - Cylce 1
Zack and friends with the Lantz Crew...GO PREDS!!!
Sunday, February 23, 2020
Hockey Fights Cancer Night
It's been a while since we've updated the blog - life has been "normal," and we have a true appreciation for the routine and monotony of regular life - but we wanted to share something awesome that we were able to be a part of last night!
Caroline was asked to represent Monroe Carell Jr. Children's Hospital at Vanderbilt for the Nashville Predators' "Hockey Fights Cancer Night." She was actually asked to participate last year, but was too sick, and in the hospital. However, last night she was feeling great and able to help bring awareness to pediatric cancer, along with other oncology friends (some survivors and some in active treatment). They all got to particiapte in a wide variety of pre-game activities.
Caroline was gifted a personalized jersey with her last name and the year she was diagnosed, had her picture taken with Flashes of Hope photography, and was then led down to the locker room. She was selected to be the hype girl and open the doors to greet the Predators players as they headed out to the ice (video below). Graciously, they also included Andrew in that part of the festivities; he said it was one of the best nights of his life! After fist-bumping all of the players, Caroline got to watch the team warm-up against the glass, and then accompany team captain, Roman Josi, on the ice for the National Anthem!!!
All of the kids and their families were treated to box suites, where they cheered on the Predators in a nail-biting game: the Predators won the game in sudden-death overtime, with 8 rounds of a shoot-out! It could not have been a better ending to a wonderful night for our family, but most importantly, the Predators fans donated over $51,000 for Cancer research at Vanderbilt, from collections made during the game!
We want to thank the groups and friends that made the night so perfect for us all: The Nashville Predators, The Nashville Predators Foundation, The 365 Pediatric Cancer Fund, Pekka Rinne, Monroe Carell Jr. Children's Hospital at Vanderbilt's staff and medical team members, Tracy and Buddy from Angel Heart Farms, Flashes of Hope, the Larsen Family, and Caroline's grandparents for coming out to support us!
Overall, Caroline is doing really well these days, She is still loving Kindergarten and American Girl Dolls. Her one-year progress scans will be some time in April, and we will certainly update the blog with results. Thank you for the continued prayers for clear scans!
Amazing!
Caroline was asked to represent Monroe Carell Jr. Children's Hospital at Vanderbilt for the Nashville Predators' "Hockey Fights Cancer Night." She was actually asked to participate last year, but was too sick, and in the hospital. However, last night she was feeling great and able to help bring awareness to pediatric cancer, along with other oncology friends (some survivors and some in active treatment). They all got to particiapte in a wide variety of pre-game activities.
Caroline was gifted a personalized jersey with her last name and the year she was diagnosed, had her picture taken with Flashes of Hope photography, and was then led down to the locker room. She was selected to be the hype girl and open the doors to greet the Predators players as they headed out to the ice (video below). Graciously, they also included Andrew in that part of the festivities; he said it was one of the best nights of his life! After fist-bumping all of the players, Caroline got to watch the team warm-up against the glass, and then accompany team captain, Roman Josi, on the ice for the National Anthem!!!
All of the kids and their families were treated to box suites, where they cheered on the Predators in a nail-biting game: the Predators won the game in sudden-death overtime, with 8 rounds of a shoot-out! It could not have been a better ending to a wonderful night for our family, but most importantly, the Predators fans donated over $51,000 for Cancer research at Vanderbilt, from collections made during the game!
We want to thank the groups and friends that made the night so perfect for us all: The Nashville Predators, The Nashville Predators Foundation, The 365 Pediatric Cancer Fund, Pekka Rinne, Monroe Carell Jr. Children's Hospital at Vanderbilt's staff and medical team members, Tracy and Buddy from Angel Heart Farms, Flashes of Hope, the Larsen Family, and Caroline's grandparents for coming out to support us!
Overall, Caroline is doing really well these days, She is still loving Kindergarten and American Girl Dolls. Her one-year progress scans will be some time in April, and we will certainly update the blog with results. Thank you for the continued prayers for clear scans!
Super Fan
Buddy from Angel Heart Farms
Twins
Family
Gnash
Pekka Rinne
So close!
She made the big screen - in the middle with Roman Josi!
We love Vandy!
Champ!
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