In 2017, Caroline was diagnosed with Stage IV, High-Risk Neuroblastoma: an aggressive, solid-tumor cancer that spread throughout almost all of her body, including her bone marrow. She completed a 2-year clinical trial (called DFMO) in April 2021, and relapsed in April 2022. She is currently a patient at the Monroe Carell Jr. Children's Hospital at Vanderbilt in Nashville, TN; this blog documents her journey.
Friday, November 30, 2018
Caroline is on the tail end of round 2, part 2, of Immunotherapy...the nurses have hung the last couple infusion bags, and everything should be complete by tomorrow. It's been a really, really, really rough week on her body - probably one of the hardest since she's been diagnosed. She has had all of the predicted side effects: nausea/vomiting, diarrhea, severe nerve pain, generalized pain, fluid retention, rash/itching, low blood pressure, low oxygen saturation, and extremely high fevers. Some of her fevers have been so high they didn't even register on the thermometer, which goes up to 105 degrees! While all of these are considered "normal" side effects for this treatment, it is still very scary and upsetting to watch. Luckily, the team at Vanderbilt has been able to make Caroline as comfortable as possible, and she's even been able to "rest" a little. We are hoping to head home this weekend. As you can (or maybe cannot) imagine, this is mentally exhausting and draining for all of us, so thank you for the prayers for comfort this week, we really appreciate each and every one.