This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Monday, June 11, 2018
We have spent 27 of the last 28 nights at the hospital, and it looks like we are here for at least 1 additional night (maybe more). Caroline needs to be fever-free for the next 24 hours, maintain good blood and platelet counts, and be eating and drinking enough on her own before they will consider her for discharge. She is in good spirits, and her appetite is returning a bit, so we are cautiously optimistic. Please continue to pray for progress with recovery so we can get home ASAP!
Family Fun Party ticket link below- Thank you for all the support!