Tuesday, April 20, 2021

2-Year Scan Results / End of Clinical Trial

Results are officially in for Caroline’s 2-year scans and tests. ALL of the results are positive: NO EVIDENCE OF DISEASE (NED)!

CT Scan - NED
Neuroblastoma Urine Markers - NED
Bone Marrow Biopsy - NED
Hearing Test - Stable
Bloodwork - Stable

Thank you to Dr. Bri and the entire Vandy Medical team for helping us get to this place! Caroline will continue to get various quarterly check-ups and tests at Vanderbilt Children's Hospital for the next couple of years.

Caroline’s clinical trial drug (DFMO) officially ended Sunday night. For 2 straight years, she took 6 pills per day...hard to imagine that she swallowed 4,380 pills...especially considering this was in addition to the 18 months of her standard treatment protocol for Neuroblastoma

She is now officially both cancer-free and medication-free!!! It’s surreal to think Caroline has hit every mark we’d hoped for since she was diagnosed in 2017.

For this particular milestone (the clinical trial ending), we’d especially like to thank the amazing leaders at Beat Childhood Cancer Foundation: Pat, Dr. Sholler, Kyle, Savie, AJ, and the entire team. Their tireless research and clinical trials, like DFMO, are literally saving lives. Click here to support their efforts, which are mostly funded by donations.

We’re beyond grateful to the community that has surrounded us over the past 3.5 years; we truly would not have been able to manage without you. Thank you, thank you!

The Lantz Family

Celebrating the end of DFMO: 4,380 pills with an "Orange You Glad This Is Over" theme, since Caroline wasn't allowed to have citrus while on the clinical trial.

Audiology Testing

Nuclear MIBG Injection

CT Scan

Walking herself back (per usual!) to be sedated for the MIBG Scan

Waiting for scans on diagnosis day and last day of Clinical Trial...she's come a long way!


  1. Congratulations from a fellow NB mama!

  2. Congratulations! What a blessing. Fantastic news. Wishing all the best and much happiness.

  3. We are so happy for you!!!! Our Brody's 2 year celebration will be Oct 2021 being on DFMO!! GOD willing we'll be celebrating just like you guys!!! Congratulations!

  4. I am so proud of you Caroline. You are a force to be reckoned with in life and soccer. Love always Coach Ci

  5. So happy to hear for Caroline and family! We met during proton therapy and John is doing great too! Back to school, no more treatments and being a kid again. Long road for all but grateful.

  6. Stopped by to check on your family, and this is wonderful news! Congratulations Caroline on your successful treatment! Your strength and determination are admirable! Have a great summer and continue to enjoy everything around you! God Bless!

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