Tuesday, May 23, 2023

Cycle 16

Caroline was admitted yesterday for Cycle 16 (of 17) for treatment of her relapsed Neuroblastoma.  Like all the previous cycles, she will get 2 types of chemotherapies and an antibody treatment along with numerous other medications for side effects and comfort.

She tested positive for rhino/enterovirus (aka the common cold), so we'll be on isolation while she's here.  We're hoping she doesn’t have any additional issues with oxygen, etc. with all the sinus drainage.

If all goes well, we are hoping Caroline can come home Saturday.

Thank you for the continued prayers and support!
The Lantz Family

Getting swabbed before being admitted...

Thursday, May 11, 2023

Treatment Schedule Update / Next Steps

Caroline completed Cycle 15 (of 17) for treatment of her relapsed Neuroblastoma. She came home Saturday and has been feeling well enough to participate in school and family activities this week. Assuming she meets her bloodwork requirements, her next scheduled admission will be May 22nd. We are hopeful she can stay on track and finish out these last 2 cycles on time (by June 17th).

In other news, we had a call this week with our Vanderbilt Oncology team and the Oncology team from Levine Children’s Hospital in Charlotte, NC, to discuss post-treatment “next steps.” Assuming all goes well with Cycles 16 and 17, her bone marrow is clear, and her scans remain clear after treatment, we will be enrolling Caroline in a high-dose DFMO clinical trial at Levine Children’s Hospital. This drug (DFMO) is one of the only available maintenance treatments for Neuroblastoma in the world. We are grateful that Caroline will be able to take something to hopefully/potentially prevent another relapse. We will keep you posted as we get closer, but we are very appreciative of Dr. Smith’s and Dr. Sholler’s teams working together - not only help minimize travel, but most importantly, give Caroline access to the best possible chance of surviving this awful disease. More to come…

Thank you for all the prayers and continued support (especially the Ubereats cards for the hospital)!
The Lantz Family

Caroline in Hyde Park, FL a few weeks ago...

Wednesday, May 3, 2023

Cycle 15

Caroline is currently inpatient for Cycle 15 (of 17) of treatment for her relapsed Neuroblastoma. Side effects hit her quickly and harshly on Monday, but they're currently under control. As always, we're praying for a continued uneventful, effective cycle.

Thank you for the continued support and prayers!

Much love,
The Lantz Family

Caroline's anti-nausea meds made her sleep through Mark & Andrew's visit, so we documented their visit for when she woke up...