Tuesday, April 20, 2021

2-Year Scan Results / End of Clinical Trial

Results are officially in for Caroline’s 2-year scans and tests. ALL of the results are positive: NO EVIDENCE OF DISEASE (NED)!

CT Scan - NED
MIBG Scan - NED
Neuroblastoma Urine Markers - NED
Bone Marrow Biopsy - NED
Hearing Test - Stable
Bloodwork - Stable

Thank you to Dr. Bri and the entire Vandy Medical team for helping us get to this place! Caroline will continue to get various quarterly check-ups and tests at Vanderbilt Children's Hospital for the next couple of years.

Caroline’s clinical trial drug (DFMO) officially ended Sunday night. For 2 straight years, she took 6 pills per day...hard to imagine that she swallowed 4,380 pills...especially considering this was in addition to the 18 months of her standard treatment protocol for Neuroblastoma

She is now officially both cancer-free and medication-free!!! It’s surreal to think Caroline has hit every mark we’d hoped for since she was diagnosed in 2017.

For this particular milestone (the clinical trial ending), we’d especially like to thank the amazing leaders at Beat Childhood Cancer Foundation: Pat, Dr. Sholler, Kyle, Savie, AJ, and the entire team. Their tireless research and clinical trials, like DFMO, are literally saving lives. Click here to support their efforts, which are mostly funded by donations.

We’re beyond grateful to the community that has surrounded us over the past 3.5 years; we truly would not have been able to manage without you. Thank you, thank you!

The Lantz Family
#carolinestrong
#ftgf

Celebrating the end of DFMO: 4,380 pills with an "Orange You Glad This Is Over" theme, since Caroline wasn't allowed to have citrus while on the clinical trial.


Audiology Testing

Nuclear MIBG Injection

CT Scan

Walking herself back (per usual!) to be sedated for the MIBG Scan

Waiting for scans on diagnosis day and last day of Clinical Trial...she's come a long way!

Friday, February 26, 2021

Update: Last DFMO Refill

Caroline went to Vanderbilt today for the FINAL refill supply of her clinical trial drug, DFMO.  The trial will end for her on April 17, 2021, at which time she will be completely medication-free!  After two years of taking six DFMO pills each day, this is both exciting and terrifying for us.

In addition to getting the refill meds today, she received blood and urine tests; we are still waiting on those results and should have them sometime next week.  Her next round of scans and tests are scheduled for mid-April, right before completing the clinical trial, so we will update the blog again at that time.

Right now, Caroline is excelling in first grade, taking acting classes, and just wrapped up her first-ever basketball season.  

Thank you for the continued prayers and support!

Team Lantz
#carolinestrong
#ftgf


Last refill of DFMO!