Update(ish)

Although it's been two weeks since we discovered the relapse, and we've been doing a ton of "stuff behind the scenes," we don’t have many updates right now.

What we know right now:

• The attempt to biopsy the spot on her pelvis was unsuccessful due to the size and because it only showed up on her PET scan, not on the CT, which is what they primarily use to guide the biopsy needle. Therefore, at this time, we have no tissue to send off for sequencing / analysis for any potential precision medicine recommendations.

• The bone marrow biopsy from her lower back was negative for Neuroblastoma - good news / bad news. It hasn’t spread to her marrow yet, but that also means no biopsy results for disease sequencing and targeted therapries.

• Last, but definitely not least, the treatment trial we are trying to enroll her in has strict FDA requirements for labwork ranges/results, which Caroline's body has been unable to meet (despite 4 different lab draws at 2 different locations), so we are not currently able to enroll her.

What all of this means: for now, we wait.  We will test her again next week to see if she qualifies...if she does, we will enroll her immediately...if she does not, we'll have to pivot to another plan.

We will update the blog as soon as we have any relevant information.  We're still all struggling to process the news of the relapse, in addition to all of the setbacks.  We're so grateful for the messages, gift cards, and most importantly: prayers.  Please keep praying.

Love,

The Lantz Family
#carolinestrong
#ftgf

Prepping for her CT-guided pelvic biopsy.