This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Caroline was discharged to come home from Cycle 6 today. The side effects of the medicine hit her very hard this week - nausea, vomiting, diarrhea, and pain. It is beyond words to describe the awful feeling of watching endure this treatment...and in a post COVID-19 world, only parents/guardians are permitted in patient rooms. Not being able to have visitors makes for a very lonely week...and being separated from Andrew is another kind of awful. We're so grateful that her body is responding positively to treatment, and we know it could always be worse, but it's daunting to think we aren't even halfway through this relapse treatment. One day at a time...
Much appreciation for the amazing staff at Vanderbilt...they are so kind and caring to our daughter, and entire family!
Thank you all for your continued generosity, prayers and support; it means more than you know.
The Lantz Family #carolinestrong #ftgf
Wiped and resting at home after a really hard week.
Caroline was one of the patients selected to interview Keith Urban and Nicole Kidman this week, during their visit to the hospital's "Seacrest Studio."
Caroline didn’t meet the minimum bloodwork requirements when we went to clinic this morning to get admitted for her next round of chemo/antibody...her body is just pretty beat up from the past 5 rounds of treatment. We will try again next Monday.