Caroline went to Vanderbilt today for the FINAL refill supply of her clinical trial drug, DFMO. The trial will end for her on April 17, 2021, at which time she will be completely medication-free! After two years of taking six DFMO pills each day, this is both exciting and terrifying for us.
In addition to getting the refill meds today, she received blood and urine tests; we are still waiting on those results and should have them sometime next week. Her next round of scans and tests are scheduled for mid-April, right before completing the clinical trial, so we will update the blog again at that time.Right now, Caroline is excelling in first grade, taking acting classes, and just wrapped up her first-ever basketball season.
Thank you for the continued prayers and support!