This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Thursday, July 12, 2018
Next Steps / Family Meals
Caroline's "at home break" in between treatments is coming to an end. She will be admitted on Monday (7/16), for the second round of high-dose chemo, and a second stem cell transplant. We expect to be inpatient at the hospital for about 4 weeks straight, most of which will just be recovery from the 4 days of high-dose chemo. The expected side effects include: high fever, loss of appetite, mucositis, vomiting, diarrhea, possible rash, fatigue, etc. Caroline will begin this inpatient stay on isolation and contact precautions because she is still testing positive for the "rhino virus" (aka: common cold). It will (once again) be a very difficult stretch for Caroline, and our entire family. Please continue to keep us in your daily prayers. Here is the remaining approximate treatment timeline:
Assuming there are no setbacks, the above treatment plan runs through April 2019.
We have decided to not post any at-home delivery meal train dates for the upcoming hospital stay, since most of our time will be spent at Vanderbilt. However, if you would like to donate a meal, please click here and you will be directed to Postmates gift card page. You can send the gift card to Margaret's email (email@example.com). It is a very convenient option for us to get dinner delivered from a restaurant close to the hospital, and saves us from eating in the limited food court all the time...