- December 19th: Labs, CT Scan, PET Scan, Clinic visit and and a blood transfusion @ Vanderbilt
- December 20th: we received news that the PET scan was clear, but the CT scan showed a spot of concern on the bone in Caroline’s pelvic area. After discussing with Caroline's medical team and a surgeon, we decided to move forward with a biopsy to rule out another relapse. As an extra precaution, they also decided to do a bi-lateral bone marrow biopsy while Caroline was already sedated.
- December 22nd: Traveled to Levine Children's in Charlotte, NC for a Clinic visit and DFMO refill
- December 28th: Caroline was sedated for a bi-lateral bone marrow biopsy in her lower back and a CT-guided biopsy of the concerning spot on her right pelvic bone
- January 3rd: After delayed test results due to the holiday, we received news that BOTH BIOPSIES ARE CLEAR of any cancer.
After almost 3 weeks incomprehensible anxiety and fear, we are able to exhale a little and try and reset as we move into the new year. We're so thankful for Dr. Smith and the entire medical team for acting so quickly to get us clarity!
On another note, we are thrilled to celebrate that after a decade, the FDA approved DFMO (now called "iwilfin") for maintenance treatment of Neuroblastoma. Soon, the drug will be available for all doctors to prescribe anywhere in the United States. Special thanks to Dr. Sholler, Pat Lacey and the entire BEATCC team for working with US WorldMeds and the FDA to get this done! The approval of DFMO is the first pediatric cancer drug ever to approved without a double blind placebo study. Click here to read all about the precedent-setting approval...simply amazing!
Wishing you all peace and health in 2024,
The Lantz Family
#carolinestrong
#ftgf
Walking herself back to surgery
In recovery, waking up from sedation
Leaving Levine Children's with DFMO!
DFMO - now called "iwilfin"
Praise God! The entire Long family adores Caroline and have been praying for your precious girl!!!! Will keep praying and praising 🙏🏼🙏🏼🙏🏼!!!
ReplyDeleteSo happy for the great results!
ReplyDeleteKick butt Caroline, you are in my prayers every day.
ReplyDeleteThis is amazing news! Congratulations, Caroline!! - Joelle
ReplyDeleteI wanted to add that you are my inspiration! I’m sitting in the chemo chair now, thinking about how amazing you are and knowing I can do it, too! Thank you, Caroline! -Joelle
DeletePraise God! She is such a blessing. I will continue to pray for your family. May 2024 be the beat year ever
ReplyDeleteCaroline you are amazing and God has you and your family in the palm of his hands. You are a true inspiration to others! Wishing you and your family a truly healthy 2024!
ReplyDeleteThankful to hear such positive news!
ReplyDeleteWow! That’s great news! God’s blessings as you return to a healthy young girl’s life. Go Caroline!
ReplyDeletePraise God Caroline Strong
ReplyDeletePraising God for such a wonderful report!!
ReplyDeleteI just said to Kyle we haven’t seen any updates so I started searching! Great news! Know that Kyle and Kathy Long are always praying and cheering you on!!!
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