Real talk: we (Mark and Margaret) are really struggling with PTSD. It's hard to return to “normal” when your life was obliterated by cancer; there is no going back to "normal." So much of our life still revolves around the ripple effects of Caroline's diagnosis, treatment, current clinical trial and future hospital appointments. We are doing our best to move forward every day, but we often find ourselves struggling mentally now more than when she was actually in treatment at the hospital. During that time, our minds were on high alert and in "attack" mode - they were not fully processing what was happening. Now we have the luxury of some time to think and process. Cancer is never “over” or “behind us." We seem to actually suffer more now from “scanxiety” in the weeks leading up to her appointments, as well as some time after...even when the results are great news...than when she was in the thick of it. So, next up in September, Caroline will get a CT Scan, MIBG scan, blood work, hearing tests, EKG, echocardiogram and more targeted urine tests.
Thank you for all the continued prayers, love and support! It really does mean everything to us - as they say, it "takes a village.”
Caroline is still on the clinical trial (called DFMO) that requires her to take 6 pills daily. Funded by BeatNb.org, the DFMO team is diligently and quite literally trying to find a cure for cancer; their work is groundbreaking. BeatNb sent out an email today where Caroline is featured in the lab with Dr. Sholler, one of the leading Neuroblastoma doctors in the country. This picture was taken during a trip to see her last summer, and Caroline was actually looking at live Neuroblastoma cells! We pulled the below directly from the recent email...the facts are mind-blowing:
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Wishing everyone all the best!
The Lantz Family