In 2017, Caroline was diagnosed with Stage IV, High-Risk Neuroblastoma: an aggressive, solid-tumor cancer that spread throughout almost all of her body, including her bone marrow. She completed a 2-year clinical trial (called DFMO) in April 2021, and relapsed in April 2022. She is currently a patient at the Monroe Carell Jr. Children's Hospital at Vanderbilt in Nashville, TN; this blog documents her journey.
Caroline just completed 3 days of testing, which concluded today with a CT Scan and an MIBG Scan. The results show that she still has NO EVIDENCE OF DISEASE at the 6-month mark. She will continue to take her 6 daily pills of the DFMO clinical trail, and then return for a 3-month check-up towards the end of the year.
Thank you for your steadfast support and prayers through this long, long journey!