This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Caroline completed Cycle 2 of her chemo-antibody therapy, and was discharged on Saturday. She’s home resting and recovering from the harsh side effects of treatment. Unless she needs to sooner, her next clinic appointment is on Friday (5/27). She has progress scans and a bone marrow biopsy on 6/1 and 6/2. We will update the blog after we get the results from her scans. Thank you so much for your prayers and support.
The Lantz Family #ftgf #carolinestrong
How she spent most of the time inpatient.
Heading home...too weak to walk.
Rashes from the antibody leaving her system.
One shot per day for 7 days post-inpatient treatment.
Caroline started Cycle 2 today - two chemotherapies (Irinotecan and Temozolimade) each day for five days. The antibody therapy (Dinutuximab) will be added tomorrow - it runs for 20 hours per day through Saturday. The antibody causes extreme pain, so starting tomorrow until we leave, she will be on a constant dilaudid drip 24/7.
Assuming all goes well, Caroline should be discharged this weekend. The other main side effects from this treatment are: rash, nausea, diarrhea and fever.
Please pray for an uneventful week, and that this treatment is working to kill off all of the Neuroblastoma cells in her body. She will get her progress scans on June 3rd.
It's been a busy 2.5 weeks at home for Caroline! The first few days of side effects from the treatment were ROUGH and hit Caroline really hard. She ended up getting an NG tube to assist with taking medication. She also started to lose a lot of hair over the past few days, and asked us to shave her head. So many changes!
Caroline has been able to go to school most of last week, and all this week. After school, she has been going fishing with her brother and really loves it. Cycle 2 is scheduled to begin Monday (5/16)...we will post an update from the hospital.
Thank you for the constant outpouring of love, support and prayers; we are so grateful you all are helping us walk through this again.