This blog documents Caroline's cancer journey. November 2017: Diagnosed with Stage IV, High-Risk Neuroblastoma...April 2019: Completed treatment protocol and declared to have no evidence of disease; enrolled in DFMO Clinical Trial...April 2021: Completed DFMO clinical trial...April 2022: Neuroblastoma Relapsed...June 2023: Completed treatment protocol and declared to have no evidence of disease; enrolled in “compassionate use” high-dose DFMO clinical trial.
Wednesday, May 11, 2022
It's been a busy 2.5 weeks at home for Caroline! The first few days of side effects from the treatment were ROUGH and hit Caroline really hard. She ended up getting an NG tube to assist with taking medication. She also started to lose a lot of hair over the past few days, and asked us to shave her head. So many changes!
Caroline has been able to go to school most of last week, and all this week. After school, she has been going fishing with her brother and really loves it. Cycle 2 is scheduled to begin Monday (5/16)...we will post an update from the hospital.
Thank you for the constant outpouring of love, support and prayers; we are so grateful you all are helping us walk through this again.