Friday, November 29, 2024

Scan Results on Black Friday (again!)

›
Caroline spent Black Friday at Vanderbilt today for her treatment progress scans (CT and PET), and lab work...she was originally diagnosed 7...
8 comments:
Friday, November 8, 2024

Cycle 2 Complete!

›
Caroline wrapped the second cycle of her new treatment combo of Danyelza + Cytoxan + Topotecan. She's tired and feels yucky overall, so...
2 comments:
Monday, November 4, 2024

Outpatient Immunotherapy and Chemotherapy

›
Caroline (finally) "made counts" today and was allowed to start treatment again.   She received an immunotherapy and 2 chemotherap...
7 comments:
Monday, October 28, 2024

Treatment Delayed (again)

›
Caroline's ANC (immune system) was still too low to receive treatment today. She is going to get a daily booster shot this week to try ...
2 comments:
Monday, October 21, 2024

Treatment bumped this week

›
Caroline went to clinic this morning in hopes of starting the 2nd round of treatment for her relapsed neuroblastoma. Unfortunately, her ANC...
5 comments:
Monday, October 7, 2024

HOME

›
After spending a long weekend at Vanderbilt for fever / fighting off something (undetermined), Caroline was discharged tonight and will now ...
3 comments:
Saturday, October 5, 2024

Unplanned Hospital Admission

›
Caroline spiked a fever late yesterday afternoon, which led us to the Vandy ER for bloodwork and a precautionary IV antibiotic. Once a bed ...
5 comments:
Thursday, October 3, 2024

Immunotherapy Update

›
Caroline completed 2 outpatient infusions of Naxitamab this week...experiencing the expected side effects (mostly pain, itching and rash).  ...
Friday, September 27, 2024

Inpatient Cycle 1 Complete

›
Caroline returned home this morning from 5 days of inpatient treatment which, included 2 different chemotherapies daily + an immunotherapy o...
2 comments:
Monday, September 16, 2024

Revised Treatment Plan for Relapse #2

›
After consulting with the Vanderbilt medical team (among others), and looking at all safe and reasonable options for care, here is where we ...
8 comments:
Wednesday, September 11, 2024

Scan Results - Tumor Growth

›
Caroline's scans results came back and unfortunately showed growth in the tumor, as well as an additional area of disease in her abdomen...
15 comments:
Friday, August 23, 2024

Cycle 2: Complete / #carolinestrong T-Shirts Available

›
Caroline completed Cycle 2 of immunotherapy today. Although she had some chest pain, itching and a mild rash during the infusion, the side ...
2 comments:
Monday, August 19, 2024

Cycle 2 Update

›
Caroline started Cycle 2 of her antibody treatment today; assuming all goes according to plan, she will get 3 total infusions this week.  To...
Friday, July 26, 2024

Cycle 1 = Complete!

›
Caroline has officially completed Cycle 1 of her treatment plan for her relapsed neuroblastoma. The side effects from this immunotherapy ar...
1 comment:
Monday, July 22, 2024

Infusion 1 Complete!

›
Caroline completed her first immunotherapy infusion today; she was able to get through with minimal side effects.  She had some pain and dis...
7 comments:
Friday, July 19, 2024

Port Placement, Bone Marrow Biopsy, CT Scan / Ways to Help

›
Today was a very long, full day at the hospital for Caroline. CT Scan Results : showed slight growth in the tumor size from her last scan 3....
2 comments:
Thursday, July 11, 2024

Treatment Start Date

›
We (finally) have a plan and start date!  Caroline will begin treatment for her 2nd relapse of Neuroblastoma with the following timeline: Ju...
7 comments:
Wednesday, July 3, 2024

MIBG Scan / Update(ish)

›
Caroline's latest updates:  ~ the spot that appeared on Caroline's CT and PET scans last week also show up in her MIBG scan today, w...
8 comments:
Wednesday, June 26, 2024

Quarterly Scans - Relapse #2

›
We received horrible news yesterday: both routine imaging scans (PET and CT) showed a spot in Caroline's chest that appears to be relaps...
30 comments:
Monday, March 25, 2024

March Scan Results / Podcast

›
Caroline recently had her quarterly scans and tests to check for any signs of potential recurring Neuroblastoma disease. Fortunately, she st...
2 comments:
Thursday, January 4, 2024

Scan Results / DFMO Approval

›
We had a rather stressful holiday season that consisted of multiple visits to Vanderbilt and a trip to Levine Children's Hospital in Cha...
12 comments:
Friday, November 24, 2023

6 Year Cancer-versary

›
On this exact day - Black Friday, November 24, 2017, Caroline was diagnosed with Stage IV, High-Risk Neuroblastoma.  6 years later, November...
2 comments:
Sunday, October 1, 2023

Updates: Scans, Charlotte/Clinical Trial, Hearing Loss and "Regular" Life

›
It's been a busy 3 months since we last updated the blog; Caroline has lived a lot of life! Starting with t he best news , her most rece...
6 comments: