Wednesday, June 4, 2025

Radiation Update

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Caroline completed her five SBRT photon radiation treatments (higher dose, ultra-concentrated radiation).  Compared to her radiation in Mar...
1 comment:
Thursday, May 15, 2025

Treatment Next Steps

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We were at Vanderbilt today for consultation and simulation with Caroline's Radiation Oncologist and his team. Fortunately, it looks lik...
2 comments:
Monday, May 12, 2025

A Weekend of Distraction

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We will finalize Caroline's "next steps" for treatment this Thursday (5/15) and update the blog as soon as we're able. In ...
3 comments:
Tuesday, May 6, 2025

Scan Results

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Caroline had a CT and PET scan at Vandy today to check progress post radiation treatments. RESULTS: - The spot they radiated in March by he...
10 comments:
Tuesday, March 25, 2025

Ringing the Bell!

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Caroline was able to "ring the bell" today, signifying the radiation portion of her treatment is complete!  She will have a 6-week...
2 comments:
Wednesday, February 26, 2025

Radiation Treatment

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Caroline had her first photon radiation treatment today at the Vanderbilt-Ingram Cancer Center. There was some anxiety leading up to the ap...
2 comments:
Tuesday, February 11, 2025

Radiation Treatment Planning

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Caroline had her radiation oncology simulation at Vanderbilt today.  The team measured/marked her treatment area and fitted her for a custom...
14 comments:
Tuesday, January 28, 2025

Scan Results

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Caroline's scan results showed good news overall.  One of her cancerous spots is no longer visible on imaging, and the other one measure...
13 comments:
Wednesday, January 22, 2025

Unexpected Hospital Admission

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Last week was a really rough week for Caroline at home. She was presenting with various "not well" symptoms all week, especially ...
7 comments:
Monday, January 13, 2025

Outpatient Cycle 4 - Complete

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Caroline wrapped up Cycle 4 of her treatment today. Rash and itching were the primary side effects during the infusions, but she is safe at ...
3 comments:
Friday, January 10, 2025

Cycle Delay for Snow

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Clinic is closed today due to snow, so Caroline's last infusion for this cycle of treatment was moved to Monday.  Sending warm wishes to...
3 comments:
Monday, January 6, 2025

Cycle 4 Underway

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Caroline started cycle 4 of her current treatment plan today: Immunotherapy + 2 Chemotherapies. Although nothing "unexpected" hap...
3 comments:
Saturday, December 14, 2024

Cycle 3 - Complete

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Caroline completed her 3rd cycle of outpatient Immunotherapy + Chemo yesterday, and is now home resting.  Although she had a really rough an...
4 comments:
Monday, December 9, 2024

Cycle 3 - Immunotherapy + 2 Chemotherapies

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Caroline started the 3rd round of her current treatment plan (Danyelza + Cytoxan + Topotecan).  She had a really challenging time today with...
7 comments:
Friday, November 29, 2024

Scan Results on Black Friday (again!)

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Caroline spent Black Friday at Vanderbilt today for her treatment progress scans (CT and PET), and lab work...she was originally diagnosed 7...
7 comments:
Friday, November 8, 2024

Cycle 2 Complete!

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Caroline wrapped the second cycle of her new treatment combo of Danyelza + Cytoxan + Topotecan. She's tired and feels yucky overall, so...
2 comments:
Monday, November 4, 2024

Outpatient Immunotherapy and Chemotherapy

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Caroline (finally) "made counts" today and was allowed to start treatment again.   She received an immunotherapy and 2 chemotherap...
7 comments:
Monday, October 28, 2024

Treatment Delayed (again)

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Caroline's ANC (immune system) was still too low to receive treatment today. She is going to get a daily booster shot this week to try ...
2 comments:
Monday, October 21, 2024

Treatment bumped this week

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Caroline went to clinic this morning in hopes of starting the 2nd round of treatment for her relapsed neuroblastoma. Unfortunately, her ANC...
5 comments:
Monday, October 7, 2024

HOME

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After spending a long weekend at Vanderbilt for fever / fighting off something (undetermined), Caroline was discharged tonight and will now ...
3 comments:
Saturday, October 5, 2024

Unplanned Hospital Admission

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Caroline spiked a fever late yesterday afternoon, which led us to the Vandy ER for bloodwork and a precautionary IV antibiotic. Once a bed ...
4 comments:
Thursday, October 3, 2024

Immunotherapy Update

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Caroline completed 2 outpatient infusions of Naxitamab this week...experiencing the expected side effects (mostly pain, itching and rash).  ...
Friday, September 27, 2024

Inpatient Cycle 1 Complete

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Caroline returned home this morning from 5 days of inpatient treatment which, included 2 different chemotherapies daily + an immunotherapy o...
1 comment:
Monday, September 16, 2024

Revised Treatment Plan for Relapse #2

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After consulting with the Vanderbilt medical team (among others), and looking at all safe and reasonable options for care, here is where we ...
8 comments:
Wednesday, September 11, 2024

Scan Results - Tumor Growth

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Caroline's scans results came back and unfortunately showed growth in the tumor, as well as an additional area of disease in her abdomen...
15 comments:
Friday, August 23, 2024

Cycle 2: Complete / #carolinestrong T-Shirts Available

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Caroline completed Cycle 2 of immunotherapy today. Although she had some chest pain, itching and a mild rash during the infusion, the side ...
1 comment:
Monday, August 19, 2024

Cycle 2 Update

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Caroline started Cycle 2 of her antibody treatment today; assuming all goes according to plan, she will get 3 total infusions this week.  To...