Monday, October 28, 2024

Treatment Delayed (again)

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Caroline's ANC (immune system) was still too low to receive treatment today. She is going to get a daily booster shot this week to try ...
2 comments:
Monday, October 21, 2024

Treatment bumped this week

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Caroline went to clinic this morning in hopes of starting the 2nd round of treatment for her relapsed neuroblastoma. Unfortunately, her ANC...
5 comments:
Monday, October 7, 2024

HOME

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After spending a long weekend at Vanderbilt for fever / fighting off something (undetermined), Caroline was discharged tonight and will now ...
3 comments:
Saturday, October 5, 2024

Unplanned Hospital Admission

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Caroline spiked a fever late yesterday afternoon, which led us to the Vandy ER for bloodwork and a precautionary IV antibiotic. Once a bed ...
5 comments:
Thursday, October 3, 2024

Immunotherapy Update

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Caroline completed 2 outpatient infusions of Naxitamab this week...experiencing the expected side effects (mostly pain, itching and rash).  ...
Friday, September 27, 2024

Inpatient Cycle 1 Complete

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Caroline returned home this morning from 5 days of inpatient treatment which, included 2 different chemotherapies daily + an immunotherapy o...
2 comments:
Monday, September 16, 2024

Revised Treatment Plan for Relapse #2

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After consulting with the Vanderbilt medical team (among others), and looking at all safe and reasonable options for care, here is where we ...
8 comments:
Wednesday, September 11, 2024

Scan Results - Tumor Growth

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Caroline's scans results came back and unfortunately showed growth in the tumor, as well as an additional area of disease in her abdomen...
15 comments:
Friday, August 23, 2024

Cycle 2: Complete / #carolinestrong T-Shirts Available

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Caroline completed Cycle 2 of immunotherapy today. Although she had some chest pain, itching and a mild rash during the infusion, the side ...
2 comments:
Monday, August 19, 2024

Cycle 2 Update

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Caroline started Cycle 2 of her antibody treatment today; assuming all goes according to plan, she will get 3 total infusions this week.  To...
Friday, July 26, 2024

Cycle 1 = Complete!

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Caroline has officially completed Cycle 1 of her treatment plan for her relapsed neuroblastoma. The side effects from this immunotherapy ar...
1 comment:
Monday, July 22, 2024

Infusion 1 Complete!

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Caroline completed her first immunotherapy infusion today; she was able to get through with minimal side effects.  She had some pain and dis...
7 comments:
Friday, July 19, 2024

Port Placement, Bone Marrow Biopsy, CT Scan / Ways to Help

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Today was a very long, full day at the hospital for Caroline. CT Scan Results : showed slight growth in the tumor size from her last scan 3....
2 comments:
Thursday, July 11, 2024

Treatment Start Date

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We (finally) have a plan and start date!  Caroline will begin treatment for her 2nd relapse of Neuroblastoma with the following timeline: Ju...
7 comments:
Wednesday, July 3, 2024

MIBG Scan / Update(ish)

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Caroline's latest updates:  ~ the spot that appeared on Caroline's CT and PET scans last week also show up in her MIBG scan today, w...
8 comments:
Wednesday, June 26, 2024

Quarterly Scans - Relapse #2

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We received horrible news yesterday: both routine imaging scans (PET and CT) showed a spot in Caroline's chest that appears to be relaps...
30 comments:
Monday, March 25, 2024

March Scan Results / Podcast

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Caroline recently had her quarterly scans and tests to check for any signs of potential recurring Neuroblastoma disease. Fortunately, she st...
2 comments:
Thursday, January 4, 2024

Scan Results / DFMO Approval

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We had a rather stressful holiday season that consisted of multiple visits to Vanderbilt and a trip to Levine Children's Hospital in Cha...
12 comments:
Friday, November 24, 2023

6 Year Cancer-versary

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On this exact day - Black Friday, November 24, 2017, Caroline was diagnosed with Stage IV, High-Risk Neuroblastoma.  6 years later, November...
2 comments:
Sunday, October 1, 2023

Updates: Scans, Charlotte/Clinical Trial, Hearing Loss and "Regular" Life

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It's been a busy 3 months since we last updated the blog; Caroline has lived a lot of life! Starting with t he best news , her most rece...
6 comments:
Friday, June 30, 2023

DFMO Clinical Trial

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Caroline and Mark traveled to Levine Children's Hospital in Charlotte, NC this week to enroll in the only "expanded access" DF...
4 comments:
Wednesday, June 21, 2023

A Message from Caroline: Scan Results!

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  A message from Caroline about her PET and CT Scan results...stay tuned for an update next week on bone marrow biopsy results and her visit...
9 comments:
Saturday, June 17, 2023

SEVENTEEN Cycles: Complete!

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When Caroline relapsed in April 2022 and we were working with her team to figure out the best treatment plan...eventually landing on 17 cycl...
7 comments:
Monday, June 12, 2023

Cycle 17: "Sad, Excited, Scared..."

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Caroline was admitted for Cycle 17 of treatment for relapsed Neuroblastoma. Her ANC was low today, but her labs looked ok otherwise, so with...
9 comments: