Sunday, October 1, 2023

Updates: Scans, Charlotte/Clinical Trial, Hearing Loss and "Regular" Life

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It's been a busy 3 months since we last updated the blog; Caroline has lived a lot of life! Starting with t he best news , her most rece...
6 comments:
Friday, June 30, 2023

DFMO Clinical Trial

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Caroline and Mark traveled to Levine Children's Hospital in Charlotte, NC this week to enroll in the only "expanded access" DF...
4 comments:
Wednesday, June 21, 2023

A Message from Caroline: Scan Results!

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  A message from Caroline about her PET and CT Scan results...stay tuned for an update next week on bone marrow biopsy results and her visit...
9 comments:
Saturday, June 17, 2023

SEVENTEEN Cycles: Complete!

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When Caroline relapsed in April 2022 and we were working with her team to figure out the best treatment plan...eventually landing on 17 cycl...
7 comments:
Monday, June 12, 2023

Cycle 17: "Sad, Excited, Scared..."

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Caroline was admitted for Cycle 17 of treatment for relapsed Neuroblastoma. Her ANC was low today, but her labs looked ok otherwise, so with...
9 comments:
Monday, May 29, 2023

Home Sweet Home from Cycle 16

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Caroline was discharged from Cycle 16 (of 17) of her inpatient treatment at Vanderbilt on Saturday.  As with the pervious cycles, she will g...
2 comments:
Tuesday, May 23, 2023

Cycle 16

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Caroline was admitted yesterday for Cycle 16 (of 17) for treatment of her relapsed Neuroblastoma.  Like all the previous cycles, she will ge...
2 comments:
Thursday, May 11, 2023

Treatment Schedule Update / Next Steps

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Caroline completed Cycle 15 (of 17) for treatment of her relapsed Neuroblastoma. She came home Saturday and has been feeling well enough to...
7 comments:
Wednesday, May 3, 2023

Cycle 15

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Caroline is currently inpatient for Cycle 15 (of 17) of treatment for her relapsed Neuroblastoma. Side effects hit her quickly and harshly ...
6 comments:
Thursday, April 20, 2023

Progress Scans Results

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Caroline had progress scans on Monday (4/17); the scan results:   CT scan: No new findings to suggest recurrent or metastatic disease. PET ...
9 comments:
Saturday, April 8, 2023

Relapse-iversary / Cycle 14 Complete

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After a mostly "uneventful" Cycle 14, Caroline was discharged this morning and is home resting. Today also marks the one year anni...
5 comments:
Tuesday, April 4, 2023

Cycle 14 / Life Lately

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Caroline was admitted yesterday for Cycle 14 (of 17) to treat her relapsed Neuroblastoma. She's struggling with the "usual" s...
Sunday, March 19, 2023

Cycle 13 Complete / Clip in 4 the Cure

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Caroline was discharged from Vanderbilt on Saturday and is now home resting.  Other than the "normal" nausea and belly pain, the w...
3 comments:
Monday, March 13, 2023

Cycle 13 on 3/13

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Caroline made her blood count requirements today for inpatient admission of Cycle 13 (of 17) for chemotherapy/immunotherapy treatment for he...
8 comments:
Sunday, February 26, 2023

Unplanned Hospital Stay

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Unfortunately, after just a couple days home from Cycle 12, Caroline went to the ER with intense stomach pain and was admitted back into Van...
5 comments:
Saturday, February 18, 2023

Cycle 12 and Life Update

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Today, Caroline completed Cycle 12 (of 17) of her chemo/anti-body treatment for relapsed Neuroblastoma.  It was a relatively "uneventfu...
4 comments:
Monday, January 23, 2023

Cycle 11 - Complete

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Caroline was discharged today after completing Cycle 11 of inpatient treatment for relapsed Neuroblastoma.  It was a great week of positive ...
9 comments:
Tuesday, January 17, 2023

Scan Results - Cycle 11 Admission

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Caroline had 2 scans to follow-up on her December readings that where inconclusive due to RSV inflammation in her midsection. Todays scan re...
8 comments:
Friday, January 6, 2023

Delayed Cycle 11 and Christmas Magic

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Caroline didn't make counts this week to be admitted for Cycle 11.  She has scans on January 17th, so we're going to give her body a...
6 comments:
Sunday, December 18, 2022

Rough Cycle 10 Complete

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Caroline has been discharged from Cycle 10 - the toughest cycle she’s had since her relapse. In addition to the “regular” side effects of n...
12 comments:
Tuesday, December 13, 2022

Admitted for Cycle 10

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Caroline was admitted for Cycle 10 (of 17) yesterday, following a really rough month of being in and out of the hospital.  Please pray for a...
7 comments: