#carolinestrong

Nov 2017: diagnosed with Stage IV, High-Risk Neuroblastoma; Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease (NED); April 2019-April 2021: enrolled in/completed DFMO clinical trial; April 2022: RELAPSE; April 2022-June 2023: completed relapse treatment protocol / NED (again); June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial; June 2024: RELAPSE #2; July 2025 NED (again)

Friday, October 15, 2021

Life Update / Scan Results: 30 Months

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Over the past few weeks, Caroline has recieved numerous post-treatement tests/scans/appointments, which concluded yesterday.  As always, we ...
2 comments:
Tuesday, April 20, 2021

2-Year Scan Results / End of Clinical Trial

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Results are officially in for Caroline’s 2-year scans and tests. ALL of the results are positive: NO EVIDENCE OF DISEASE (NED)! CT Scan - NE...
9 comments:
Friday, February 26, 2021

Update: Last DFMO Refill

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Caroline went to Vanderbilt today for the FINAL refill supply of her clinical trial drug, DFMO.  The trial will end for her on April 17, 202...
2 comments:
Wednesday, December 2, 2020

CT Scan Results

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Caroline had her follow-up CT scan today, and the results where all good!  The scan showed no issues with the spot that appeared on her live...
Friday, October 16, 2020

Results: 18-Month Scans / Tests

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Caroline had her 18-month labs, tests and scans over the past few weeks.  She got a hearing test, COVID test, blood work, Neuroblastoma urin...
3 comments:
Wednesday, June 17, 2020

Results: 15-Month Check-Up

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Last week, Caroline had her 15-month check-up at Monroe Carell Jr. Children’s Hospital at Vanderbilt. The immediate results of her numerous ...
5 comments:
Sunday, April 12, 2020

Happy Easter and Caroline is Officially 1-Year Cancer-FREE!!!

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Although Caroline had her 12-month scans in early March, today (April 12th) marks the actual ONE YEAR Anniversary of No Evidence of Disease ...
1 comment:
Friday, March 13, 2020

Results: One-Year Scans

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Caroline had her 1-year scans this week, and the CT Scan, MIBG Scan and lab markers all show NO EVIDENCE OF DISEASE !!!  To say we are beyon...
5 comments:
Sunday, February 23, 2020

Hockey Fights Cancer Night

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It's been a while since we've updated the blog - life has been "normal," and we have a true appreciation for the routine a...
8 comments:
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Margaret Lantz
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