#carolinestrong

Nov 2017: diagnosed with Stage IV, High-Risk Neuroblastoma; Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease (NED); April 2019-April 2021: enrolled in/completed DFMO clinical trial; April 2022: RELAPSE; April 2022-June 2023: completed relapse treatment protocol / NED (again); June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial; June 2024: RELAPSE #2; July 2025 NED (again)

Friday, October 16, 2020

Results: 18-Month Scans / Tests

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Caroline had her 18-month labs, tests and scans over the past few weeks.  She got a hearing test, COVID test, blood work, Neuroblastoma urin...
3 comments:
Wednesday, June 17, 2020

Results: 15-Month Check-Up

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Last week, Caroline had her 15-month check-up at Monroe Carell Jr. Children’s Hospital at Vanderbilt. The immediate results of her numerous ...
5 comments:
Sunday, April 12, 2020

Happy Easter and Caroline is Officially 1-Year Cancer-FREE!!!

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Although Caroline had her 12-month scans in early March, today (April 12th) marks the actual ONE YEAR Anniversary of No Evidence of Disease ...
1 comment:
Friday, March 13, 2020

Results: One-Year Scans

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Caroline had her 1-year scans this week, and the CT Scan, MIBG Scan and lab markers all show NO EVIDENCE OF DISEASE !!!  To say we are beyon...
5 comments:
Sunday, February 23, 2020

Hockey Fights Cancer Night

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It's been a while since we've updated the blog - life has been "normal," and we have a true appreciation for the routine a...
8 comments:
Sunday, November 24, 2019

TWO YEARS since diagnosis - where are we now?

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It’s hard to believe we’ve hit the two year “cancer-versary” of Caroline’s diagnosis: November 24, 2017. We feel so many things, but mostly ...
6 comments:
Friday, October 4, 2019

6-Month Scan Results

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Caroline just completed 3 days of testing, which concluded today with a CT Scan and an MIBG Scan.  The results show that she still has NO EV...
7 comments:
Thursday, September 12, 2019

Giving Back - Help Caroline's Team WIN!!!

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Hello friends and family! Caroline is back in school, playing YMCA soccer, starting Daisy Scouts, faithfully cheering on her brother (who ...
1 comment:
Thursday, August 8, 2019

BeatNb, Dr. Sholler & DFMO Lab Visit

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Our family had the honor and privilege of spending a very rewarding day with the BeatNb.org team yesterday at their main research laborator...
3 comments:
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Margaret Lantz
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