Caroline had her 1-year scans this week, and the CT Scan, MIBG Scan and lab markers all show NO EVIDENCE OF DISEASE!!! To say we are beyond thankful is an understatement! She will continue to take her DFMO clinical trial drug (to hopefully prevent relapse) for the next 13 months, and will be re-scanned in 6 months. With the flu season and COVID-19, we're hoping she can remain healthy through the season.
We're so grateful to her medical team that helped get us here, and who continue to work hard every day for these families! Also a huge shout to all the folks at BeatNb who are fighting so hard for these kids to be able to get access to DFMO, which shows amazing promise in battling this awful disease.
Be safe out there!
The Lantz Family
November 2017: diagnosed with Stage IV, High-Risk Neuroblastoma; Nov 2017-April 2019: completed standard treatment protocol / no evidence of disease; April 2019-April 2021: enrolled in/completed DFMO clinical trial; April 2022: RELAPSE; April 2022-June 2023: completed relapse treatment protocol / no evidence of disease (again); June 2023-June 2024: enrolled in “compassionate use” high-dose DFMO clinical trial; June 2024: RELAPSE #2
