Hello friends and family!
Caroline is back in school, playing YMCA soccer, starting Daisy Scouts, faithfully cheering on her brother (who is playing multiple sports!), and overall doing well. Her next round of progress scans are scheduled for early October; we will update the blog with results.
With standard treatment behind us, our family has spent a lot of our free time giving back to the pediatric oncology community, and especially at Vanderbilt. Most recently, Caroline was asked to participate in the Rascal Flatts Celebrity Golf Classic! Please join us in donating to Team Caroline & Levi for Vanderbilt’s fundraising drive. Let’s beat the other team and win this one!
Nov 2017: Diagnosed with Stage IV high-risk Neuroblastoma. Nov 2017–Apr 2019: Completed standard treatment; NED. Apr 2019–Apr 2021: Completed DFMO clinical trial. Apr 2022: Relapse. Apr 2022–Jun 2023: Completed relapse treatment; NED again. Jun 2023–Jun 2024: High-dose DFMO (compassionate use) clinical trial. Jun 2024: Second relapse. Jul 2025: NED again. Mar 2026: Relapse.
Thursday, September 12, 2019
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